The GrowDMD project won first prize in the poster competition at the Transition to Adulthood Pop-Up event in Vancouver in December 2023. Anne Fournier and Rocio Gutierrez represented the international research team at the Child Health Hub event, held at the Hyatt Regency on December 2-3, 2023. […]

The GrowDMD research team presented their international study at RARE2023, the 5th International Conference on Rare Diseases. Sebastian Friedrich from University Hospital Freiburg represented the collaborative team spanning Germany, Italy, and Canada at this premier gathering of rare disease researchers, clinicians, and patient advocates. […]

The second GrowDMD Consortium meeting took place on 11th-13th October in Milan, hosted by the team Istituto Neurologico "Carlo Besta". Partners shared progress on their work to date, including the systematic review of existing scientific evidence about transition in DMD, and preparations for the main phase of data collection in the project. On the afternoon of 12th there was [...]

Dear friends, we are very happy to inform you that the 20th International Conference on Duchenne and Becker muscular dystrophy organized by Parent Project aps, will be held from the 17th to the 19th of February 2023 in Rome, at Ergife Palace Hotel, Via Aurelia 619 (www.ergifepalacehotel.com). […]

From 26 to 28 October 2022 we met for our first Kick-Off meeting! […]