Alessia Marcassoli from the Fondazione IRCCS Istituto Neurologico Carlo Besta in Milan and Sebastian Friedrich from University Hospital Freiburg traveled to Prague to represent the GrowDMD project at the World Muscle Society 2024 congress. Together, they presented three research posters addressing the critical issue of healthcare transition for young people with Duchenne muscular dystrophy. […]

From October 2–4, 2024, researchers, clinicians, individuals living with Duchenne Muscular Dystrophy, and their families gathered in Montreal, Canada, for the international GrowDMD meeting. […]

We are honored to announce that the GrowDMD project was awarded the Poster Prize of the German Society for Social Pediatrics and Adolescent Medicine (DGSPJ) at the Congress for Pediatric and Adolescent Medicine 2024 in Mannheim. […]

The GrowDMD project won first prize in the poster competition at the Transition to Adulthood Pop-Up event in Vancouver in December 2023. Anne Fournier and Rocio Gutierrez represented the international research team at the Child Health Hub event, held at the Hyatt Regency on December 2-3, 2023. […]

The GrowDMD research team presented their international study at RARE2023, the 5th International Conference on Rare Diseases. Sebastian Friedrich from University Hospital Freiburg represented the collaborative team spanning Germany, Italy, and Canada at this premier gathering of rare disease researchers, clinicians, and patient advocates. […]

The second GrowDMD Consortium meeting took place on 11th-13th October in Milan, hosted by the team Istituto Neurologico "Carlo Besta". Partners shared progress on their work to date, including the systematic review of existing scientific evidence about transition in DMD, and preparations for the main phase of data collection in the project. On the afternoon of 12th there was [...]