On September 26, 2025, around 120 participants attended the fourth Duchenne Switzerland Conference at the Swiss Paraplegic Centre in Nottwil. People with Duchenne, their families, professionals, and researchers took the opportunity to exchange ideas and discuss current developments.
We are very pleased to announce that Professor Thorsten Langer was recently featured on the internationally renowned ResearchWorks Podcast – representing the European Academy of Childhood Disability (EACD) and the IAACD/EACD 2025 Conference.
As part of the EACD/IAACD 2025 conference – held in Germany for the first time – an interdisciplinary symposium addressed the transition of young people with Duchenne Muscular Dystrophy (DMD) from pediatric to adult care. Experts from Germany, Italy, Canada, and Israel presented country-specific challenges, care strategies, and findings from current research projects.
On June 25, 2025, all GrowDMD research partners met in Heidelberg to share interim findings and plan the next phases of collaboration.
At the Annual Meeting of the German Society for Neuropediatrics (GNP) in October 2024 in Stuttgart, Prof. Dr. Thorsten Langer from the University Medical Center Freiburg presented key findings from the GrowDMD project.
Alessia Marcassoli from the Fondazione IRCCS Istituto Neurologico Carlo Besta in Milan and Sebastian Friedrich from University Hospital Freiburg traveled to Prague to represent the GrowDMD project at the World Muscle Society 2024 congress. Together, they presented three research posters addressing the critical issue of healthcare transition for young people with Duchenne muscular dystrophy.
From October 2–4, 2024, researchers, clinicians, individuals living with Duchenne Muscular Dystrophy, and their families gathered in Montreal, Canada, for the international GrowDMD meeting.
